{"id":2221,"date":"2022-04-08T01:19:43","date_gmt":"2022-04-08T01:19:43","guid":{"rendered":"https:\/\/smasteer.wpengine.com\/que-esperar\/"},"modified":"2022-09-22T15:40:29","modified_gmt":"2022-09-22T15:40:29","slug":"que-esperar","status":"publish","type":"page","link":"https:\/\/thesteerstudy.com\/co\/que-esperar\/","title":{"rendered":"Qu\u00e9 esperar"},"content":{"rendered":"<p>[vc_row unlock_row_content=&#8221;yes&#8221; row_height_percent=&#8221;0&#8243; override_padding=&#8221;yes&#8221; h_padding=&#8221;5&#8243; top_padding=&#8221;3&#8243; bottom_padding=&#8221;1&#8243; overlay_alpha=&#8221;50&#8243; gutter_size=&#8221;3&#8243; column_width_percent=&#8221;100&#8243; shift_y=&#8221;0&#8243; z_index=&#8221;0&#8243; uncode_shortcode_id=&#8221;193723&#8243;][vc_column width=&#8221;1\/1&#8243;][vc_custom_heading heading_semantic=&#8221;h1&#8243; text_size=&#8221;h1&#8243; uncode_shortcode_id=&#8221;102227&#8243; subheading=&#8221;El estudio dura hasta 72 semanas (hasta 17 meses) con 29 visitas para pruebas y 2 hospitalizaciones.&#8221;]\u00bfQu\u00e9 ocurre durante el estudio?[\/vc_custom_heading][vc_single_image media=&#8221;85&#8243; media_width_percent=&#8221;100&#8243; uncode_shortcode_id=&#8221;105576&#8243;][\/vc_column][\/vc_row][vc_row unlock_row_content=&#8221;yes&#8221; row_height_percent=&#8221;0&#8243; override_padding=&#8221;yes&#8221; h_padding=&#8221;5&#8243; top_padding=&#8221;2&#8243; bottom_padding=&#8221;4&#8243; overlay_alpha=&#8221;50&#8243; gutter_size=&#8221;3&#8243; column_width_percent=&#8221;100&#8243; shift_y=&#8221;0&#8243; z_index=&#8221;0&#8243; uncode_shortcode_id=&#8221;154932&#8243;][vc_column width=&#8221;2\/3&#8243;][vc_column_text uncode_shortcode_id=&#8221;587747&#8243;]*Al final del estudio, su hijo(a) tendr\u00e1 la opci\u00f3n de inscribirse en un estudio de seguimiento a largo plazo en el que se monitorear\u00e1 su salud durante 15 a\u00f1os m\u00e1s.[\/vc_column_text][vc_button button_color=&#8221;color-jevc&#8221; size=&#8221;btn-lg&#8221; border_animation=&#8221;btn-ripple-out&#8221; outline=&#8221;yes&#8221; border_width=&#8221;2&#8243; button_color_type=&#8221;uncode-palette&#8221; uncode_shortcode_id=&#8221;152205&#8243; link=&#8221;url:https%3A%2F%2Fsmasteer.wpengine.com%2F%23participate|&#8221;]\u00bfQui\u00e9n puede participar?[\/vc_button][\/vc_column][vc_column width=&#8221;1\/3&#8243;][\/vc_column][\/vc_row][vc_row unlock_row_content=&#8221;yes&#8221; row_height_percent=&#8221;0&#8243; override_padding=&#8221;yes&#8221; h_padding=&#8221;7&#8243; top_padding=&#8221;3&#8243; bottom_padding=&#8221;3&#8243; back_color=&#8221;color-914595&#8243; overlay_alpha=&#8221;50&#8243; gutter_size=&#8221;3&#8243; column_width_percent=&#8221;100&#8243; shift_y=&#8221;0&#8243; z_index=&#8221;0&#8243; uncode_shortcode_id=&#8221;198236&#8243; back_color_type=&#8221;uncode-palette&#8221;][vc_column width=&#8221;1\/1&#8243;][vc_single_image media=&#8221;3002&#8243; media_width_percent=&#8221;90&#8243; alignment=&#8221;center&#8221; uncode_shortcode_id=&#8221;141728&#8243;][\/vc_column][\/vc_row][vc_row unlock_row_content=&#8221;yes&#8221; row_height_percent=&#8221;0&#8243; override_padding=&#8221;yes&#8221; h_padding=&#8221;5&#8243; top_padding=&#8221;3&#8243; bottom_padding=&#8221;4&#8243; back_color=&#8221;color-914595&#8243; overlay_alpha=&#8221;50&#8243; gutter_size=&#8221;3&#8243; column_width_percent=&#8221;100&#8243; shift_y=&#8221;0&#8243; z_index=&#8221;0&#8243; uncode_shortcode_id=&#8221;106647&#8243; back_color_type=&#8221;uncode-palette&#8221;][vc_column column_width_percent=&#8221;100&#8243; position_vertical=&#8221;middle&#8221; gutter_size=&#8221;3&#8243; overlay_alpha=&#8221;50&#8243; shift_x=&#8221;0&#8243; shift_y=&#8221;0&#8243; shift_y_down=&#8221;0&#8243; z_index=&#8221;0&#8243; medium_width=&#8221;0&#8243; mobile_width=&#8221;0&#8243; width=&#8221;5\/12&#8243; uncode_shortcode_id=&#8221;183673&#8243;][vc_single_image media=&#8221;87&#8243; media_width_use_pixel=&#8221;yes&#8221; alignment=&#8221;center&#8221; uncode_shortcode_id=&#8221;166811&#8243; media_width_pixel=&#8221;200&#8243;][\/vc_column][vc_column column_width_percent=&#8221;95&#8243; position_horizontal=&#8221;left&#8221; position_vertical=&#8221;middle&#8221; gutter_size=&#8221;3&#8243; overlay_alpha=&#8221;50&#8243; shift_x=&#8221;0&#8243; shift_y=&#8221;0&#8243; shift_y_down=&#8221;0&#8243; z_index=&#8221;0&#8243; medium_width=&#8221;0&#8243; mobile_width=&#8221;0&#8243; width=&#8221;7\/12&#8243; uncode_shortcode_id=&#8221;763803&#8243;][vc_custom_heading heading_semantic=&#8221;h1&#8243; text_size=&#8221;h1&#8243; uncode_shortcode_id=&#8221;227058&#8243; subheading=&#8221;Para dar permiso para que su hijo(a) participe, antes de comenzar el estudio deber\u00e1 leer y firmar un formulario de consentimiento informado. Dependiendo de su edad, algunos(as) ni\u00f1os(as) tambi\u00e9n deben dar permiso mediante la firma de un formulario de asentimiento informado. Luego, el m\u00e9dico del estudio recopilar\u00e1 informaci\u00f3n y realizar\u00e1 pruebas para asegurarse de que el estudio sea adecuado para su hijo(a).&#8221;]Selecci\u00f3n[\/vc_custom_heading][vc_button button_color=&#8221;color-jevc&#8221; size=&#8221;btn-lg&#8221; border_animation=&#8221;btn-ripple-out&#8221; outline=&#8221;yes&#8221; border_width=&#8221;2&#8243; button_color_type=&#8221;uncode-palette&#8221; uncode_shortcode_id=&#8221;202159&#8243; link=&#8221;url:%23tests|&#8221;]Otras pruebas[\/vc_button][\/vc_column][\/vc_row][vc_row unlock_row_content=&#8221;yes&#8221; row_height_percent=&#8221;0&#8243; override_padding=&#8221;yes&#8221; h_padding=&#8221;5&#8243; top_padding=&#8221;4&#8243; bottom_padding=&#8221;2&#8243; overlay_alpha=&#8221;50&#8243; gutter_size=&#8221;3&#8243; column_width_percent=&#8221;100&#8243; shift_y=&#8221;0&#8243; z_index=&#8221;0&#8243; uncode_shortcode_id=&#8221;139417&#8243;][vc_column width=&#8221;1\/1&#8243;][vc_custom_heading heading_semantic=&#8221;h1&#8243; text_size=&#8221;h1&#8243; uncode_shortcode_id=&#8221;480260&#8243; subheading=&#8221;El estudio consta de 2 periodos de tratamiento junto con 2 periodos de seguimiento:&#8221;]Tratamiento y seguimiento[\/vc_custom_heading][\/vc_column][\/vc_row][vc_row unlock_row_content=&#8221;yes&#8221; row_height_percent=&#8221;0&#8243; override_padding=&#8221;yes&#8221; h_padding=&#8221;5&#8243; top_padding=&#8221;2&#8243; bottom_padding=&#8221;2&#8243; overlay_alpha=&#8221;50&#8243; gutter_size=&#8221;4&#8243; column_width_percent=&#8221;100&#8243; shift_y=&#8221;0&#8243; z_index=&#8221;0&#8243; uncode_shortcode_id=&#8221;181455&#8243;][vc_column column_width_percent=&#8221;100&#8243; align_horizontal=&#8221;align_center&#8221; gutter_size=&#8221;3&#8243; overlay_alpha=&#8221;50&#8243; shift_x=&#8221;0&#8243; shift_y=&#8221;0&#8243; shift_y_down=&#8221;0&#8243; z_index=&#8221;0&#8243; medium_width=&#8221;0&#8243; mobile_width=&#8221;0&#8243; width=&#8221;1\/2&#8243; uncode_shortcode_id=&#8221;417798&#8243;][vc_single_image media=&#8221;88&#8243; media_width_percent=&#8221;100&#8243; uncode_shortcode_id=&#8221;175841&#8243;][\/vc_column][vc_column column_width_percent=&#8221;100&#8243; align_horizontal=&#8221;align_center&#8221; gutter_size=&#8221;3&#8243; overlay_alpha=&#8221;50&#8243; shift_x=&#8221;0&#8243; shift_y=&#8221;0&#8243; shift_y_down=&#8221;0&#8243; z_index=&#8221;0&#8243; medium_width=&#8221;0&#8243; mobile_width=&#8221;0&#8243; width=&#8221;1\/2&#8243; uncode_shortcode_id=&#8221;154477&#8243;][vc_single_image media=&#8221;91&#8243; media_width_percent=&#8221;100&#8243; uncode_shortcode_id=&#8221;208200&#8243;][\/vc_column][\/vc_row][vc_row unlock_row_content=&#8221;yes&#8221; row_height_percent=&#8221;0&#8243; override_padding=&#8221;yes&#8221; h_padding=&#8221;5&#8243; top_padding=&#8221;3&#8243; bottom_padding=&#8221;0&#8243; back_color=&#8221;color-914595&#8243; overlay_alpha=&#8221;50&#8243; gutter_size=&#8221;3&#8243; column_width_percent=&#8221;100&#8243; shift_y=&#8221;0&#8243; z_index=&#8221;0&#8243; uncode_shortcode_id=&#8221;137887&#8243; back_color_type=&#8221;uncode-palette&#8221;][vc_column width=&#8221;1\/2&#8243;][vc_single_image media=&#8221;92&#8243; media_width_percent=&#8221;60&#8243; alignment=&#8221;center&#8221; uncode_shortcode_id=&#8221;774214&#8243;][\/vc_column][vc_column column_width_percent=&#8221;100&#8243; position_vertical=&#8221;middle&#8221; gutter_size=&#8221;3&#8243; overlay_alpha=&#8221;50&#8243; shift_x=&#8221;0&#8243; shift_y=&#8221;0&#8243; shift_y_down=&#8221;0&#8243; z_index=&#8221;0&#8243; medium_width=&#8221;0&#8243; mobile_width=&#8221;0&#8243; width=&#8221;1\/2&#8243; uncode_shortcode_id=&#8221;254054&#8243;][vc_custom_heading heading_semantic=&#8221;h1&#8243; text_size=&#8221;h1&#8243; uncode_shortcode_id=&#8221;231480&#8243; subheading=&#8221;OAV101 se administra en una \u00fanica inyecci\u00f3n en la parte inferior de la columna vertebral (inyecci\u00f3n intratecal).&#8221;]\u00bfC\u00f3mo se administra OAV101?[\/vc_custom_heading][vc_button button_color=&#8221;color-jevc&#8221; size=&#8221;btn-lg&#8221; border_animation=&#8221;btn-ripple-out&#8221; outline=&#8221;yes&#8221; border_width=&#8221;2&#8243; button_color_type=&#8221;uncode-palette&#8221; uncode_shortcode_id=&#8221;166297&#8243; link=&#8221;url:https%3A%2F%2Fsmasteer.wpengine.com%2F%23what-is|&#8221;]\u00bfQu\u00e9 es OAV101?[\/vc_button][vc_empty_space empty_h=&#8221;2&#8243;][\/vc_column][\/vc_row][vc_row unlock_row_content=&#8221;yes&#8221; row_height_percent=&#8221;0&#8243; override_padding=&#8221;yes&#8221; h_padding=&#8221;5&#8243; top_padding=&#8221;3&#8243; bottom_padding=&#8221;2&#8243; overlay_alpha=&#8221;50&#8243; gutter_size=&#8221;3&#8243; column_width_percent=&#8221;100&#8243; shift_y=&#8221;0&#8243; z_index=&#8221;0&#8243; uncode_shortcode_id=&#8221;208227&#8243; row_name=&#8221;tests&#8221;][vc_column width=&#8221;1\/1&#8243;][vc_custom_heading heading_semantic=&#8221;h1&#8243; text_size=&#8221;h1&#8243; uncode_shortcode_id=&#8221;320528&#8243; subheading=&#8221;Entre las pruebas a las que se someter\u00e1 su hijo(a) durante el estudio se incluyen las siguientes:&#8221;]\u00bfA qu\u00e9 tipo de pruebas se someter\u00e1 mi hijo(a)?[\/vc_custom_heading][\/vc_column][\/vc_row][vc_row unlock_row_content=&#8221;yes&#8221; row_height_percent=&#8221;0&#8243; override_padding=&#8221;yes&#8221; h_padding=&#8221;5&#8243; top_padding=&#8221;3&#8243; bottom_padding=&#8221;3&#8243; overlay_alpha=&#8221;50&#8243; gutter_size=&#8221;3&#8243; column_width_percent=&#8221;100&#8243; shift_y=&#8221;0&#8243; z_index=&#8221;0&#8243; uncode_shortcode_id=&#8221;138062&#8243;][vc_column column_width_percent=&#8221;100&#8243; align_horizontal=&#8221;align_center&#8221; gutter_size=&#8221;3&#8243; overlay_alpha=&#8221;50&#8243; shift_x=&#8221;0&#8243; shift_y=&#8221;0&#8243; shift_y_down=&#8221;0&#8243; z_index=&#8221;0&#8243; medium_width=&#8221;0&#8243; mobile_width=&#8221;0&#8243; width=&#8221;1\/1&#8243; uncode_shortcode_id=&#8221;439732&#8243;][vc_gallery el_id=&#8221;gallery-392723&#8243; isotope_mode=&#8221;fitRows&#8221; medias=&#8221;94,95,96,97,98,99,100,101,102,103,93&#8243; gutter_size=&#8221;3&#8243; media_items=&#8221;media|nolink|original,title&#8221; screen_lg=&#8221;1400&#8243; screen_md=&#8221;1000&#8243; screen_sm=&#8221;800&#8243; single_text=&#8221;under&#8221; single_width=&#8221;2&#8243; images_size=&#8221;one-one&#8221; single_overlay_opacity=&#8221;50&#8243; single_overlay_anim=&#8221;no&#8221; single_text_visible=&#8221;yes&#8221; single_text_anim=&#8221;no&#8221; single_image_anim=&#8221;no&#8221; single_h_align=&#8221;center&#8221; single_v_position=&#8221;top&#8221; single_padding=&#8221;2&#8243; single_title_family=&#8221;font-555555&#8243; single_title_dimension=&#8221;h4&#8243; single_border=&#8221;yes&#8221; uncode_shortcode_id=&#8221;241942&#8243;][\/vc_column][\/vc_row][vc_row unlock_row_content=&#8221;yes&#8221; row_height_percent=&#8221;0&#8243; override_padding=&#8221;yes&#8221; h_padding=&#8221;5&#8243; top_padding=&#8221;2&#8243; bottom_padding=&#8221;4&#8243; overlay_alpha=&#8221;50&#8243; gutter_size=&#8221;3&#8243; column_width_percent=&#8221;100&#8243; shift_y=&#8221;0&#8243; z_index=&#8221;0&#8243; uncode_shortcode_id=&#8221;697365&#8243;][vc_column width=&#8221;2\/3&#8243;][vc_column_text uncode_shortcode_id=&#8221;135387&#8243;]*Es posible que los ex\u00e1menes de salud mental no se apliquen a ni\u00f1os(as) menores de 7 a\u00f1os.<\/p>\n<p>Estas son solo algunas de las pruebas que tendr\u00e1n lugar durante el estudio. Su hijo(a) no se someter\u00e1 a todas las pruebas en cada visita. Hable con el m\u00e9dico del estudio para obtener m\u00e1s informaci\u00f3n.<\/p>\n<p>Tambi\u00e9n se pedir\u00e1 a los cuidadores que completen un cuestionario sobre c\u00f3mo afecta la AME de su hijo(a) su vida diaria.[\/vc_column_text][\/vc_column][vc_column width=&#8221;1\/3&#8243;][\/vc_column][\/vc_row]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>[vc_row unlock_row_content=&#8221;yes&#8221; row_height_percent=&#8221;0&#8243; override_padding=&#8221;yes&#8221; h_padding=&#8221;5&#8243; top_padding=&#8221;3&#8243; bottom_padding=&#8221;1&#8243; overlay_alpha=&#8221;50&#8243; gutter_size=&#8221;3&#8243; column_width_percent=&#8221;100&#8243; shift_y=&#8221;0&#8243; z_index=&#8221;0&#8243; uncode_shortcode_id=&#8221;193723&#8243;][vc_column width=&#8221;1\/1&#8243;][vc_custom_heading heading_semantic=&#8221;h1&#8243; text_size=&#8221;h1&#8243; uncode_shortcode_id=&#8221;102227&#8243; subheading=&#8221;El estudio dura [&hellip;]<\/p>\n","protected":false},"author":6,"featured_media":83,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"inline_featured_image":false,"footnotes":""},"class_list":["post-2221","page","type-page","status-publish","has-post-thumbnail","hentry"],"_links":{"self":[{"href":"https:\/\/thesteerstudy.com\/co\/wp-json\/wp\/v2\/pages\/2221","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/thesteerstudy.com\/co\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/thesteerstudy.com\/co\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/thesteerstudy.com\/co\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/thesteerstudy.com\/co\/wp-json\/wp\/v2\/comments?post=2221"}],"version-history":[{"count":0,"href":"https:\/\/thesteerstudy.com\/co\/wp-json\/wp\/v2\/pages\/2221\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/thesteerstudy.com\/co\/wp-json\/wp\/v2\/media\/83"}],"wp:attachment":[{"href":"https:\/\/thesteerstudy.com\/co\/wp-json\/wp\/v2\/media?parent=2221"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}